Society guideline links: Differences of sex development

Introduction — 

This topic includes links to society and government-sponsored guidelines from selected countries and regions around the world. We will update these links periodically; newer versions of some guidelines may be available on each society's website. Some societies may require users to log in to access their guidelines.

The recommendations in the following guidelines may vary from those that appear in UpToDate topic reviews. Readers who are looking for UpToDate topic reviews should use the UpToDate search box to find the relevant content.

Links to related guidelines are provided separately. (See "Society guideline links: Classic and nonclassic congenital adrenal hyperplasia due to 21-hydroxylase deficiency" and "Society guideline links: Turner syndrome".)

International

●DSD-TRN Psychosocial Workgroup, the DSD-TRN Advocacy Advisory Network, and Accord Alliance: Interdisciplinary care in disorders/differences of sex development (DSD) – The psychosocial component of the DSD-Translational Research Network (2017)

●Global DSD Update Consortium: Global disorders of sex development update since 2006 – Perceptions, approach and care (2016)

United States

●Pediatric Endocrine Society (PES): Position statement on genital surgery in individuals with differences of sex development (DSD)/intersex traits (2020)

●American Academy of Pediatrics (AAP): Clinical report on counseling in pediatrics populations at risk for infertility and/or sexual function concerns (2018)

Europe

●COST Action BM1303: Position paper on approaches to molecular genetic diagnosis in the management of differences/disorders of sex development (DSD) (2018)

●European Cooperation in Science and Technology (COST) Action BM1303: Caring for individuals with a difference of sex development (DSD) – A consensus statement (2018)

●European Society of Paediatric Radiology (ESPR): Imaging recommendations in paediatric uroradiology, part VIII – Retrograde urethrography, imaging disorder of sexual development and imaging childhood testicular torsion (2015)

United Kingdom

●Society for Endocrinology: UK guidance on the initial evaluation of a suspected difference or disorder of sex development (2021)

Australia–New Zealand

●Australia and New Zealand Society for Paediatric Endocrinology and Diabetes (ANZSPED): Position statement on the clinical care of children with DSD (2022)