Health professional | Role in HD care |
Neurologist | Overall care coordination ("team leader"); neurologic management |
Psychiatrist | Overall care coordination ("team leader"); psychiatric management |
Psychologist | Counseling about relationships, grief, chronic disease, symptom management, etc; family support |
Neuropsychologist | Neuropsychological assessment and counseling about cognitive changes |
Geneticist or genetic counselor | Genetic counseling, predictive testing, prenatal or preimplantation genetic testing |
Social worker | Disability, financial planning, management of social crises, accessing community services, placement outside the home; advance directives; counseling (if licensed) |
Physical therapy | Gait assessment and assistive devices; exercise program |
Occupational therapy | Assessment of driving, home safety, and activities of daily living; equipment for seating, feeding, hygiene, etc |
Speech therapy | Speech assessment, alternative communication devices; dysphagia assessment and counseling |
Dietician | Nutritional assessment and counseling |
Nursing | Case management, telephone counseling, support |
Research team | Counseling about research opportunities; enrollment in research |
Chaplain | Family support, spiritual advice |
Lay organization volunteer | Liaison with HD support groups, advocacy, other organization activities |
Primary care physician | Primary care, preventive health, management of medical complications in late stages |
Dentist | Aggressive, proactive dental care |
Hospice care team | Comfort- and dignity-directed care in terminal stages |
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