Society guideline links: von Willebrand disease

Introduction — 

This topic includes links to society and government-sponsored guidelines from selected countries and regions around the world. We will update these links periodically; newer versions of some guidelines may be available on each society's website. Some societies may require users to log in to access their guidelines.

The recommendations in the following guidelines may vary from those that appear in UpToDate topic reviews. Readers who are looking for UpToDate topic reviews should use the UpToDate search box to find the relevant content.

Links to related guidelines are provided separately:

●(See "Society guideline links: Immune thrombocytopenia (ITP) and other platelet disorders".)

●(See "Society guideline links: Hemophilia A and B".)

●(See "Society guideline links: Rare inherited bleeding disorders".)

●(See "Society guideline links: Acquired bleeding disorders".)

International

●American Society of Hematology (ASH), International Society on Thrombosis and Haemostasis (ISTH), National Hemophilia Foundation (NHF), and World Federation of Hemophilia (WFH): Guidelines on the diagnosis of von Willebrand disease (2021)

●ASH, ISTH, NHF, and WFH: Guidelines on the management of von Willebrand disease (2021)

Canada

●Canadian Hemophilia Society (CHS): Guidelines for the diagnosis of von Willebrand disease (VWD) (2012, revised 2018)

United States

●National Bleeding Disorders Foundation (NBDF): Medical and Scientific Advisory Council (MASAC) recommendations concerning products licensed for the treatment of hemophilia and selected disorders of the coagulation system (2024)

●NBDF: MASAC recommendations regarding diagnosis and management of inherited bleeding disorders in girls and women with personal and family history of bleeding (2024)

●NBDF: MASAC recommendations on administration of vaccines to individuals with bleeding disorders (2023)

●NBDF: MASAC recommendations regarding physical therapy management for the care of persons with bleeding disorders (2023)

●American College of Obstetricians and Gynecologists (ACOG): Committee opinion on von Willebrand disease in women (2013, reaffirmed 2021)

●American Society of Hematology (ASH), International Society on Thrombosis and Haemostasis (ISTH), National Hemophilia Foundation (NHF), and World Federation of Hemophilia (WFH): Guidelines on the diagnosis of von Willebrand disease (2021)

●ASH, ISTH, NHF, and WFH: Guidelines on the management of von Willebrand disease (2021)

●NBDF: MASAC guidelines for pregnancy and perinatal management of women with inherited bleeding disorders and carriers of hemophilia A or B (2021)

●NBDF: MASAC recommendations regarding the treatment of von Willebrand disease (2021)

●NBDF: MASAC recommendations for management of chronic pain in persons with bleeding disorders – Guidance for practical application of the Centers for Disease Control's opioid prescribing guidelines (2020)

●NBDF: MASAC recommendation regarding home factor supply for emergency preparedness for patients with hemophilia and other bleeding disorders (2014)

●NBDF: MASAC recommendation regarding the use of recombinant clotting factor products with respect to pathogen transmission (2014)

●NBDF: MASAC recommendations regarding standards of service for pharmacy providers of clotting factor concentrates for home use to patients with bleeding disorders (2008)

●National Heart, Lung, and Blood Institution (NHLBI): The diagnosis, evaluation, and management of von Willebrand disease (2007)

●NBDF: MASAC recommendation regarding factor concentrate prescriptions and formulary development and restrictions (2005)

●NBDF: MASAC recommendations on use of COX-2 inhibitors in persons with bleeding disorders (2005)

●NBDF: Transition guidelines for people with bleeding disorders (2003)

United Kingdom

●United Kingdom Haemophilia Centres Doctors' Organisation (UKHCDO) and Royal College of Obstetricians and Gynaecologists (RCOG): Green-top guideline on the management of inherited bleeding disorders in pregnancy (2017)

●UKHCDO: Guidance on the dental management of patients with haemophilia and congenital bleeding disorders (2013, reviewed 2016)

●UKHCDO: Guideline for the diagnosis and management of von Willebrand disease (2014)

●UKHCDO: Emergency and out of hours care of patients with bleeding disorders – Standards of care for assessment and treatment (2009, reviewed 2013)

●UKHCDO: Guidance on vaccination against hepatitis A and B viruses in patients with inherited coagulation factor deficiencies and von Willebrand disease, update (2013)

Australia–New Zealand

●Australian Haemophilia Centre Directors' Organization (AHCDO): Recommendations for management of type 3 von Willebrand disease in Australia (2023)