Society guideline links: Tuberous sclerosis

Introduction — This topic includes links to society and government-sponsored guidelines from selected countries and regions around the world. We will update these links periodically; newer versions of some guidelines may be available on each society's website. Some societies may require users to log in to access their guidelines.

The recommendations in the following guidelines may vary from those that appear in UpToDate topic reviews. Readers who are looking for UpToDate topic reviews should use the UpToDate search box to find the relevant content.

International

●International Tuberous Sclerosis Complex Consensus Group: International tuberous sclerosis complex diagnostic criteria and surveillance and management recommendations, update (2021)

●International Tuberous Sclerosis Consensus Group: Cardiovascular manifestations of tuberous sclerosis complex and summary of the revised diagnostic criteria and surveillance and management recommendations (2014)

●Dermatologic and dental aspects of the 2012 International Tuberous Sclerosis Complex consensus statements (published 2014)

●Subependymal giant cell astrocytoma – Diagnosis, screening, and treatment: Recommendations from the International Tuberous Sclerosis Complex Consensus Conference 2012 (published 2013)

United Kingdom

●Tuberous sclerosis complex (TSC): Expert recommendations for provision of coordinated care (2019)

●UK guidelines for management and surveillance of tuberous sclerosis complex (2019)