Society guideline links: Primary ciliary dyskinesia

Introduction — 

This topic includes links to society and government-sponsored guidelines from selected countries and regions around the world. We will update these links periodically; newer versions of some guidelines may be available on each society's website. Some societies may require users to log in to access their guidelines.

The recommendations in the following guidelines may vary from those that appear in UpToDate topic reviews. Readers who are looking for UpToDate topic reviews should use the UpToDate search box to find the relevant content.

Links to related guidelines are provided separately. (See "Society guideline links: Bronchiectasis" and "Society guideline links: Chronic rhinosinusitis".)

International

●International BEAT-PCD consensus statement for infection prevention and control for primary ciliary dyskinesia in collaboration with ERN-LUNG PCD Core Network and patient representatives (2021)

●International consensus guideline for reporting transmission electron microscopy results in the diagnosis of primary ciliary dyskinesia (BEAT PCD TEM Criteria) (2020)

United States

●Genetic Diseases of Mucociliary Clearance Consortium (GDMCC) and Primary Ciliary Dyskinesia Foundation (PCDF): A technical paper on standardized testing protocols on nasal nitric oxide measurement in primary ciliary dyskinesia (2019)

●American Thoracic Society (ATS): An official clinical practice guideline for the diagnosis of primary ciliary dyskinesia (2018)

●PCDF: Consensus recommendations based on state of the art review – Diagnosis, monitoring, and treatment of primary ciliary dyskinesia (2016)

Europe

●European Respiratory Society (ERS): Technical standard on nasal nitric oxide measurement in children for the diagnosis of primary ciliary dyskinesia (2023)

●ERS: Guidelines for the diagnosis of primary ciliary dyskinesia (2017)

Japan

●Japanese Rhinologic Society (JRS), Japanese Society of Otolaryngology-Head and Neck Surgery (JOHNS), Japanese Respiratory Society (JRS), and Japanese Society of Pediatric Pulmonology (JSPP): Practical guide for the diagnosis and management of primary ciliary dyskinesia (2024)