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Society guideline links: Rett syndrome

Society guideline links: Rett syndrome

Introduction — This topic includes links to society and government-sponsored guidelines from selected countries and regions around the world. We will update these links periodically; newer versions of some guidelines may be available on each society's website. Some societies may require users to log in to access their guidelines.

The recommendations in the following guidelines may vary from those that appear in UpToDate topic reviews. Readers who are looking for UpToDate topic reviews should use the UpToDate search box to find the relevant content.

Links to related guidelines are provided separately. (See "Society guideline links: Autism spectrum disorder".)

International

Clinical guidelines for management of bone health in Rett syndrome based on expert consensus and available evidence (2016)

Assessment and management of nutrition and growth in Rett Syndrome (2013)

Guidelines for management of scoliosis in Rett syndrome patients based on expert consensus and clinical evidence (2009)

Canada

Canadian Paediatric Society (CPS): Position statement on evaluation of the child with global developmental delay and intellectual disability (2018)

United States

Consensus guidelines on managing Rett syndrome across the lifespan (2020)

American Academy of Pediatrics (AAP): Clinical report on comprehensive evaluation of the child with intellectual disability or global developmental delays (2014, reaffirmed 2019)

Topic 122569 Version 4.0

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