Society guideline links: Epidermolysis bullosa

Introduction — This topic includes links to society and government-sponsored guidelines from selected countries and regions around the world. We will update these links periodically; newer versions of some guidelines may be available on each society's website. Some societies may require users to log in to access their guidelines.

The recommendations in the following guidelines may vary from those that appear in UpToDate topic reviews. Readers who are looking for UpToDate topic reviews should use the UpToDate search box to find the relevant content.

International

●Recommendations on pregnancy, childbirth and aftercare in epidermolysis bullosa – A consensus-based guideline (2022)

●Physiotherapy for epidermolysis bullosa – Clinical practice guidelines (2021)

●Supporting sexuality for people living with epidermolysis bullosa – Clinical practice guidelines (2021)

●Clinical practice guidelines – Oral health care for children and adults living with epidermolysis bullosa (2020)

●Clinical practice guidelines for laboratory diagnosis of epidermolysis bullosa (2020)

●Consensus reclassification of inherited epidermolysis bullosa and other disorders with skin fragility (2020)

●Foot care in epidermolysis bullosa – Evidence-based guideline (2020)

●Occupational therapy for epidermolysis bullosa – Clinical practice guidelines (2019)

●Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family – Evidence based guidelines (2019)

●Management of cutaneous squamous cell carcinoma in patients with epidermolysis bullosa – Best clinical practice guidelines (2016)

●Pain care for patients with epidermolysis bullosa – Best care practice guidelines (2014)